Chemo #2

Some of the lovely gifts from the Wiggin' Out Party - THANK YOU!!

Last week was my second chemo and although it went better than the first one, I still got sick, but I'm learning tricks of the trade...for example, the white blood cell shot I get the day after chemo gives you massive amounts of bone pain, but taking Claratin for three days around that helps! Who knew! The day before chemo my co-workers hosted a wiggin' out part for me and decorated my head with scarves, hats and wigs...here are a few of them. I'm still learning how to tie scarves, how to rock the chic cancer bad-ass look, but so far...I'm loving he options! It was a great supportive way to go into the second dose of chemo.

Chemo this time around involved more trips to urgent care for fluids and meds; I'm more tired than anything this go around, but they tell me that is the dead cells getting flushed out of my body. My friend Christina came with me to chemo this time. I was nice to have a positive face to sit with me post conversation with my oncologist. He's serious, and hope doesn't seem to be a part of his vocabulary.  Is it too much to ask for a doctor to at least offer hope? I'm not expecting you to make everything perfect, but I simply want someone to say we're hoping for the best and we will fight together. I continue to be thankful for my tribe - family, friends, nurses - who fight along side me when doctors don't see to have that attitude. He's not a bad man; he's young with little bedside manner and less time to have experienced miracles. I'm bent on being a miracle case just to prove him wrong - that science and medicine do have limits, and meditation and faith know no bounds! Pretty sure we'll be having a conversation about hope in my next appointment...bring it on serious, oncologist man! :)

The weekend and today were rough. I started out feeling better, but then slowly progressed into nausea and dry heaves, and pain all over. The worst...I thought it would be a good idea to lay on the floor in some very basic restorative yoga poses....I guess when your body has been fighting you for about 3 months, laying on the floor hurts your bones! But at least I could laugh....yoga will solely happen on the comfort of my soft bed until further notice. :)

And the good news, my specialist and oncologist here have decided that we'll do 6 doses of doxorubicin (the lifetime max.), then I'll get a break from chemo...it could be anywhere from three months to a year depending on how it goes. They say we keep monitoring it of course then, but I'm thinking I'll keep fighting then with more natural methods. I'm still researching, but there are options. So watch out world, come October this girl is getting a chemo break!!

But magical moments continue to happen. Somehow in spite of cancer, I feel bolder, more confident, more optimistic than ever and I'm pretty sure things are going to work out beautifully!

Thank you for all the positive thoughts and well wishes through the second dose of chemo. Now for a little down time until the end of the month when I'll have a CT scan and head back to OHSU for a follow-up. We're praying the tumors will have shrunk, or at the very least not grown. I'm not so secretly praying for clear scans...#eff you cancer!

Hair.

Friday my hair REALLY started falling out...I brushed it one more time and much of what was left fell into a pile on the bathroom floor which my cat immediately wanted to play in. Weirdo.

My mom, sis and friends gathered at a friend's salon and all pitched in for the shave. It was highly liberating! I would never have considered cutting my hair short - but I was surprised that I freakin' love it! I can't wait to rock headscarves like my African friends!!

Last weekend was a whirlwind of friends and family getting me moved from my apartment back in with my parents, some good laughs, lots of naps, and finally having a bit more energy after being sick for a few days last week.

Yesterday was my first "bald" day at work - I work a scarf and my sweet co-workers shared the adventure and wore wigs, scarves and hats with me. I am so lucky to have such a great, supportive team walking through this with me.

Here they are in their wigs and hats! Amazing!

Some of my sweet supporters at Pacific Source. Love them!!

Tonight, my amazing friends hosted a "wiggin' out party" and showered me with scarfs, hats and wigs. It is a beautiful thing. In honor of Maya Angelou's death this week, I share her poem "Still I Rise..."

You may write me down in history
With your bitter, twisted lies,
You may tread me in the very dirt
But still, like dust, I'll rise.

Does my sassiness upset you?
Why are you beset with gloom?
'Cause I walk like I've got oil wells
Pumping in my living room.

Just like moons and like suns,
With the certainty of tides,
Just like hopes springing high,
Still I'll rise.

Did you want to see me broken?
Bowed head and lowered eyes?
Shoulders falling down like teardrops.
Weakened by my soulful cries.

Does my haughtiness offend you?
Don't you take it awful hard
'Cause I laugh like I've got gold mines
Diggin' in my own back yard.

You may shoot me with your words,
You may cut me with your eyes,
You may kill me with your hatefulness,
But still, like air, I'll rise.

Does my sexiness upset you?
Does it come as a surprise
That I dance like I've got diamonds
At the meeting of my thighs?

Out of the huts of history's shame
I rise
Up from a past that's rooted in pain
I rise
I'm a black ocean, leaping and wide,
Welling and swelling I bear in the tide.
Leaving behind nights of terror and fear
I rise
Into a daybreak that's wondrously clear
I rise
Bringing the gifts that my ancestors gave,
I am the dream and the hope of the slave.
I rise
I rise
I rise.

-Maya Angelou

 

I am inspired everyday by the people who read my blog, love me and support me. Going into tomorrow's chemo I feel strong, confident and well loved.  This time I'll have chemo Thursday, get the white blood cell shot Friday and fluids from Friday-Tuesday so hopefully the effects will be less horrific than last time.  I can hardly believe that it has been over two months since this whole crazy thing started with the emergency surgery...life is slowly starting to resemble some sense of normal...ok, that is still a stretch of the imagination, but I'm trying to make space for more normal in my life.
What is normal anyway? Aren't we all trying to make the best of what we have? Cancer, or not, I will dance like I have diamonds at the meeting of my thighs....what a legacy you leave behind, Ms. Angelou. I am inspired.